Reset Search Advanced Search

Living Proof Advocacy
Living Proof Advocacy

Living Proof Advocacy

Living Proof Advocacy is a communication skills and consulting company that helps organizations and individuals harness the power of spoken first-person stories to drive positive change. We do so by providing coaching, consulting and training services to organizations working on today’s most important issues.

Bristol Myers Squibb
Bristol Myers Squibb

Bristol Myers Squibb

At Bristol Myers Squibb, we are inspired by a single vision – transforming patients’ lives through science. We are in the business of breakthroughs - the kind that transform patients’ lives through life-saving, innovative medicines. We have the most talented people in the industry who come to work every day dedicated to our mission of discovering, developing and delivering innovative medicines that help patients prevail over serious diseases.

CaringBridge
CaringBridge

CaringBridge

CaringBridge is a global, nonprofit social network that keeps patients and caregivers connected with family and friends throughout health journeys. Make your health journey easier by starting a CaringBridge site. Visit www.CaringBridge.org today. How CaringBridge Works Share medical updates and photos and receive support and encourage on your free, personal, protected site. From asking for and coordinating help with tasks to personal fundraising, family and friends can rally around through your CaringBridge site.

European Patients' Forum (EPF)
European Patients' Forum (EPF)

European Patients' Forum (EPF)

The European Patients’ Forum (EPF) is an umbrella organisation of patient organisations across Europe and across disease-areas. Our 75 members include disease-specific patient groups active at EU level and national coalitions of patients.

International Alliance of Patients’ Organizations (IAPO)
International Alliance of Patients’ Organizations (IAPO)

International Alliance of Patients’ Organizations (IAPO)

The International Alliance of Patients' Organizations (IAPO) is a unique global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world. We nurture relationships with members, partners and all those involved in the healthcare value chain and build dialogue with decision makers around the world to promote patient-centred healthcare.

Pack Health
Pack Health

Pack Health

Pack Health is providing grant-funded (free) support for individuals with diverse chronic conditions during the COVID-19 pandemic. Covering over 25+ conditions, we provide human-to-human health coaching that focuses on: Weekly coaching via phone, text, and email from a certified Health Advisor who will provide support, education, and accountability.

Share4Rare
Share4Rare

Share4Rare

A registry to investigate how COVID-19 affects people with rare diseases. People with rare diseases are doubly vulnerable to COVID-19: on the one hand, many of these pathologies put patients' health at a higher risk during a SARS-CoV-2 infection, and, on the other, confinement and lack of medical care due to the saturation of certain health services are making it difficult to treat these patients. If little is known about how this new infectious disease affects people without previous pathologies, even less is known about the effect of COVID-19 in people with unknown rare diseases.

The European Patients’ Academy on Therapeutic Innovation (EUPATI)
The European Patients’ Academy on Therapeutic Innovation (EUPATI)

The European Patients’ Academy on Therapeutic Innovation (EUPATI)

EUPATI is the only dedicated training provider for patients and patient representatives on the end to end process of medicines research and development. Trained patient experts are the core resource for patient involvement in medicines R&D, regulatory deliberations, and other patient engagement initiatives. EUPATI is committed to changing the face of patient engagement through patient education.

PAN Foundation
PAN Foundation

PAN Foundation

The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping under insured people living with life-threatening, chronic, and rare diseases get the medications they need by assisting with their out-of-pocket costs and advocating for improved access and affordability for all.

The Wellness League
The Wellness League

The Wellness League

The Wellness League is a geographically focused, community-based, peer-driven ecosystem that provides holistic health education (including for diet and lifestyle), liver health screening, linkage to clinical trials and care, and wellness navigation for NAFLD/NASH patients.